explore -WSS

explore

author：Wikipedia 2025-09-30 19:25:08 - browse：2

Nathan Guo, left, and his wife Ada Lio encourage their 17-month-old son, Lucas Guo, to take steps in his gate trainer at their home in Somerville, MA on February 16, 2024. Lucas has one of the world's rarest diseases, ZTTK Syndrome — Lucas Guo, a boy with a rare neurological condition called ZTTK, is encouraged by his father, Nathan Guo, and mother, Ada Lio, to take some steps. Craig F. Walker/The Boston Globe

SOMERVILLE — At 19 months old, Lucas Guo has never crawled, walked, or stood by himself. He babbles but can’t say words. He struggles to chew and swallow. He gets most of his nutrition through a feeding tube attached to his belly.

Lucas has one of the world’s rarest diseases, ZTTK syndrome, a complex neurological disorder caused by a genetic mutation. Scientists have documented only about 60 cases worldwide and estimate that, at most, it afflicts several hundred people — far too few to encourage drug makers to find a treatment.

That economic reality has driven Lucas’s parents, Ada Lio and Nathan Guo, to take things into their own hands. Working through a small foundation, they are trying to raise $10 million to develop a treatment or cure for ZTTK in five years.

Get unlimited access to award-winning journalism and exclusive events.

Subscribe Log In

Previous article： At least 13 dead in Texas as scorching temps continue
Next article： Timeline: Special counsel's probe into Trump's handling of classified documents

entertainment

WSS

Readout LOUD podcast: A CRISPR milestone, biotech mixology

Ransomware attacks on hospitals: Study outlines patient impact

VC firm RA Capital starts a new synthetic biology incubator

Biden to sign 'historic' executive order on how US military handles sexual assault cases

Morphosys mixed study results for blood cancer drug

Interest rates are at a 22

explore

explore

hotspot

Biden outlines 'new path' to provide student loan relief after Supreme Court rejection

McConnell had minor fall 2 weeks ago, uses wheelchair periodically to get around: Sources

Hollywood unions extend contract negotiations for actors

PBM reforms clear House panel

Moonlake's readout produced a cash windfall. Risks remain

Childhood cancer progress stalls for Black, Hispanic kids: Report

Medicare details structure of new drug price negotiation program

Hospitals look to new technology to keep health care workers safe

Trump demands the U.S. pay no more for drugs than other countries … again

Ransomware attacks on hospitals: Study outlines patient impact

knowledge

American Airlines has a tentative contract deal with its pilots. Southwest is still negotiating

Ending health disparities requires full federal government, panel says

Hospitals, health systems can help patients avoid medical debt

Moscow blames Kyiv for missile attacks in southern Russia as Kremlin forces pound Ukrainian village

Timeline: Special counsel's probe into Trump's handling of classified documents

VC firm RA Capital starts a new synthetic biology incubator

entertainment

hotspot

knowledge

hotspot