hotspot -WSS

hotspot

author：fashion 2025-10-01 14:15:38 - browse：978

Photo illustration of three children against a blue background. -- health coverage from STAT — The Pashai children (from left): Abubakar, Mohammad, and Sufyan. Illustration: STAT; Photo Courtesy

On a sweltering day in August 2021, as the engines of a hulking C-17 cargo plane drowned out pops of gunfire and Taliban rocket explosions around them, the young Afghan couple looked down at their 4-month-old son, Mohammad, and felt a shuddering wave of relief. But as the plane lifted above the dusty peaks that hug Kabul like a fortress of sandstone and schist, that feeling grew heavy with grief — for the parents and siblings they were leaving behind, and for Afghanistan, the only home they’d ever known. They did not know when, if ever, they would set foot there again.

Three years later, the Pashais are fearing for their family’s lives once again. This time the existential threat they face isn’t war, but a pair of faulty genes, silently passed down through their families for generations before detonating on American soil.

In October, Mohammad was diagnosed with a rare inherited disorder — metachromatic leukodystrophy. Genetic tests revealed his youngest brother, Sufyan, though he’s showing no symptoms, also has the disease. There’s a potential cure for Sufyan, a company offering it free of charge, and a team of doctors in Minnesota ready to administer it. But the Medicaid program in the Pashais’ new home state of Texas has said it won’t cover the cost of even an initial consult to confirm he’s a good candidate for the treatment.

Get unlimited access to award-winning journalism and exclusive events.

Subscribe Log In

Previous article： In age of alternative facts, a scholarly course on calling out crap
Next article： Dewpoint Therapeutics lays off staff after losing partnerships

WSS

eGenesis tests gene

Some dementia cases could be undiagnosed liver disease

Why doctors need education on FDA device approval process

Think you might have Covid

ARCH Venture Partners is raising $3 billion for a life sciences fund

Cybersecurity threat forces Lurie Children's to take systems offline

focus

hotspot

leisure time

The cancer drug shortage isn’t new — and neither are the solutions

Vertigo drug brings hope for rare neuron disorder, Niemann

Anesthesiologist group: stop taking Ozempic before surgery

Cognito secures funding to test medical device for Alzheimer's

Dobbs anniversary: the lost opportunity of abortion as health care

General Catalyst, Summa Health deal will turn on physician buy

Psychedelics group wrestles with new pharma identity

Why doctors need education on FDA device approval process

After affirmative action ruling, medical educators look to 'holistic review'

FDA drug safety: Singulair case shows systemic surveillance flaws

focus

Do digital therapeutics have a future in medicine?

Research misconduct: Proposed new rules face resistance

Gilead’s Trodelvy fails in lung cancer, raises questions on ADCs

Elizabeth Holmes banned from government health programs

Juul spent big to court Black leaders to promote its e

Cybersecurity threat forces Lurie Children's to take systems offline

hotspot

leisure time

focus

Wikipedia