explore -WSS

explore

author：hotspot 2025-09-03 03:20:18 - browse：13

Photo illustration of three children against a blue background. -- health coverage from STAT — The Pashai children (from left): Abubakar, Mohammad, and Sufyan. Illustration: STAT; Photo Courtesy

On a sweltering day in August 2021, as the engines of a hulking C-17 cargo plane drowned out pops of gunfire and Taliban rocket explosions around them, the young Afghan couple looked down at their 4-month-old son, Mohammad, and felt a shuddering wave of relief. But as the plane lifted above the dusty peaks that hug Kabul like a fortress of sandstone and schist, that feeling grew heavy with grief — for the parents and siblings they were leaving behind, and for Afghanistan, the only home they’d ever known. They did not know when, if ever, they would set foot there again.

Three years later, the Pashais are fearing for their family’s lives once again. This time the existential threat they face isn’t war, but a pair of faulty genes, silently passed down through their families for generations before detonating on American soil.

In October, Mohammad was diagnosed with a rare inherited disorder — metachromatic leukodystrophy. Genetic tests revealed his youngest brother, Sufyan, though he’s showing no symptoms, also has the disease. There’s a potential cure for Sufyan, a company offering it free of charge, and a team of doctors in Minnesota ready to administer it. But the Medicaid program in the Pashais’ new home state of Texas has said it won’t cover the cost of even an initial consult to confirm he’s a good candidate for the treatment.

Get unlimited access to award-winning journalism and exclusive events.

Subscribe Log In

Previous article： At least 13 dead in Texas as scorching temps continue
Next article： NIH trials fail to test meaningful long Covid therapies, experts say

Wikipedia

WSS

Alzheimer's risk factor APOE4 may be a distinct form of the disease

Scientific mystery highlights the blind spots in genomics databases

For Cytokinetics, FDA rejection of heart drug would help, not hinder

Maui's cultural, historic landmarks damaged in the devastating wildfires

Alzheimer's risk factor APOE4 may be a distinct form of the disease

Listen: Merck v. USA, the best of ASCO, and Leqembi at the FDA

Wikipedia

explore

focus

United colonoscopy coverage change 'may cost lives,' doctors say

Harvard scientists, with Google, unveil the most detailed brain map ever

Food as medicine: CMS rules hamper 'prescribing' of fruits, veggies

Bird flu reported in person exposed to presumably infected cattle

Wildfire smoke exposes gaps in outdoor worker protections

Drug companies' payments and gifts affect physicians' prescribing

In age of alternative facts, a scholarly course on calling out crap

Insurer loopholes limit power of law against surprise medical bills

At least 13 dead in Texas as scorching temps continue

Alzheimer's risk factor APOE4 may be a distinct form of the disease

knowledge

South Korea throws huge K

Amylyx's ALS drug launch starts strong. It could be trouble for FDA

Q&A: Figuring out how songbirds sing may lead to better understanding of how humans learn

Scientists uncover potential path to treating deadly childhood tumor

Shkreli is convicted of fraud. Can pharma finally slam the door on him?

Drastic changes should bring profitability, startup health insurers say

focus

hotspot

Wikipedia

leisure time