explore -WSS

explore

author：knowledge 2025-08-11 09:46:12 - browse：111

Susan Ulan, right, greets her granddaughter Ivy, and her daughter Jessica (Jessie) Anderson, at Anderson's home. -- health coverage from STAT — Susan Ulan, right, greets her granddaughter Ivy, and her daughter Jessie Anderson, at Anderson's home. Suzanne Kreiter/Globe staff

The small box full of promises arrived at Jessica Anderson’s home on her 31st birthday. A little bigger than a postcard, it was white with green lettering and navy and fuchsia flourishes. She opened it and pulled out a card with pills arrayed in plastic bubbles, coral ones for the morning, baby-blue for the evening.

The culmination of decades of research, a reservoir of hope for thousands, these oblong tablets were supposed to transform her life, a life circumscribed by illness and the specter of early death.

You could say that Jessie had been sick since before she was born. A bowel obstruction detected on her mother’s ultrasound led the obstetrician to surmise the baby was likely to have cystic fibrosis, a genetic illness that impairs breathing and digestion.

Get unlimited access to award-winning journalism and exclusive events.

Subscribe Log In

Previous article： BioMarin wins approval for gene therapy to treat hemophilia A
Next article： BIO to announce reorganization, senior leaders expected to depart

entertainment

WSS

Is it ever OK for doctors to lie to their patients?

Crowdfunding for medical bills sidesteps core problem, author says

PBM executives asked to testify by House panel

Federal board approves $12.7 billion budget for Puerto Rico as island shakes off bankruptcy

Can gargling with Listerine treat gonorrhea of the mouth?

Readout Newsletter: PTC, Dyne, Rapport, Cytokinetics news

hotspot

explore

entertainment

Virginia high school admissions case could be legal follow

Most antidepressants don't work on kids, teens, study finds

DIEP, the 'gold standard' of breast reconstruction, is under threat

ADA: All diabetes patients should be screened for liver condition

Novavax promises a turnaround & Lilly roils the obesity market

Brazil's Jair Bolsonaro is barred from running for office until 2030

Activists slam private health insurers over coverage restrictions

Federal board approves $12.7 billion budget for Puerto Rico as island shakes off bankruptcy

Drug repurposing or repositioning? The language matters

Brazil's Jair Bolsonaro is barred from running for office until 2030

focus

Has Bernie Sanders reached the limit of his pharma bullying effort?

Supreme Court strikes down Biden student loan forgiveness program

Wildfire smoke map: Which US cities are forecast to be impacted by fires burning in Canada

Brain MRIs reveal impact of 'toxic stress' on Black children

Brazil's Jair Bolsonaro is barred from running for office until 2030

Here's how to stay safe from wildfire smoke amid reduced air quality

focus

entertainment

hotspot

explore